Research & Latest News

NIH Presentation on 2 Day CPET

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Staci Stevens and Mark VanNess gave an invited presentation to the National Institutes of Health’s (NIH) ME/CFS special interest group on September 21, 2016. The lecture highlighted the importance of using 2-day cardiopulmonary exercise test (CPET) in ME/CFS to objectively characterize the magnitude of post-exertional malaise. The talk emphasized three key points related to the utility of 2 day CPET:
1.  The ability to measure fatigue
2.  The objective characterization of post-exertional malaise
3.  The identification of ME/CFS subsets which point to symptom origins
Many of those in attendance will be involved in the upcoming  NIH intramural ME/CFS study. The audience was interested during the presentation and asked excellent questions which resulted in engaging discussion. It was a pleasure to be invited to speak with a group that is preparing such an ambitious series of studies in ME/CFS.

 

Post-exertional Malaise Research Opportunity

National Institutes of Health (NIH) - Turning Discovery into Health

 

Staci Stevens and Mark VanNess will present in Bethesda, MD on September 21, 2016 at the NIH ME/CFS Special Interest group.

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Mark VanNess, PhD presents at the ME/FM Society of BC’s 2016 May Awareness Event. Learn more about “Expanding Physical Capabilities in ME/CFS” by viewing the video

Workwell presented at the 2016 Combined Sections Meeting of the American Physical Therapy Association on February 18th.

Staci Stevens, Mark VanNess and Lily Chu hosted a two hour symposium on Systemic Exertion Intolerance Disease, Myalgic Encephalomyelitis, or Chronic Fatigue Syndrome? What’s In the Name and Why It Matters for PTs”.

Mark VanNess gave an oral presentation on “Chronotropic incompetence in chronic fatigue syndrome/myalgic encephalomyelitis”.

CSM 2016

Mark VanNess, PhD, is serving as Workwell Foundation’s representative to the Center for Disease Control and Prevention’s (CDC) Technical Development Workgroup!

The CDC’s ME/CFS program is embarking on a collaborative process to assess and revise existing educational materials and create new materials to incorporate the recommendations of the 2015 Institute of Medicine (IOM) report, Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Redefining an Illness. This report proposes new diagnostic criteria that are more focused on the central symptoms of ME/CFS and designed to increase the likelihood of timely recognition and diagnosis by healthcare providers.

... Centers for Disease Control and Prevention (CDC). The tips are as

Staci Stevens presented at the ME/FM Society of BC’s Awareness Event May 24, 2015 on the topic of Post-Exertional Malaise: How to do More with Less”.

Collaborating with the University of British Columbia

Workwell Foundation is pleased to announce collaboration with David Patrick, MD and his team from the University of British Columbia on the NIH funded study, “Exploring Host Gene Expression during Post-Exertional Symptom Flare in ME/CFS”. This study utilizes Workwell’s innovative serial cardiopulmonary exercise test protocol.

    

Video now available: Dr. VanNess presents, “A Realistic Approach to Exercise and Rehabilitation in ME/CFS” at the Watershed in Bristol.

The biennial International Association for Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (IACFS/ME) clinical and research conference a success!

The conference recorded nearly 400 attendees, the largest gathering in the last 15 years. Workwell’s presentations were well received and rated extremely high among audience members. If you would like an overview of the conference, visit the IACFS/ME website.

Mark VanNess, PhD will be presenting Workwell Foundation’s latest research in Ireland and the United Kingdom!

The first seminar is scheduled to educate the Northern Ireland Assembly on ME/CFS research on February 4, 2014 at Stormont’s Long Gallery. The tour will continue on February 5, 2014 at the Watershed in Bristol, UK.  Official invitations will be available soon.  If you are interested in attending this free event, please send an email requesting additional information to info@workwellfoundation.org.

Workwell announces acceptance for publication in PTJ, Journal of the American Physical Therapy Association.

An unedited version of Discriminative Validity of Metabolic and Workload Measurements to Identify Individuals With Chronic Fatigue Syndrome is available online ahead of print.  The following press release announcing this publication was issued on August 8, 2013:  Has Workwell Foundation Identified a Diagnostic Biomarker for Chronic Fatigue Syndrome?  You can also read related blogs at Health Rising, Phoenix Rising, Pro Health, and Occupy CFS.

Workwell offers the same services as the former Pacific Fatigue Lab!
For more information see Press Release/Open Letter to the CFS/ME Community

From their new locations at XCEL Physical Therapy, Ripon, CA, and Sierra Internal Medicine, Incline Village, NV, Workwell Foundation takes over where the Pacific Fatigue Lab left off. Services offered include disability evaluations, provider education, cardiopulmonary exercise testing for clinical and research purposes. Workwell staff are also available for speaking engagements and bio scientific consulting.

Events:

Seminar sponsored by OC Integrative Medical Center, May 11, 2013:
Christopher Snell presents on the topic Cardiopulmonary Exercise Testing (CPET) for Clinical Assessment of Fatigue. The video links to Part I and Part II of this presentation are now available on YouTube!

FDA Meeting, April 25-26, 2013:
Christopher Snell is an invited speaker for the FDA meeting on Drug Development for Myalgic Encephalomyelitis and Chronic Fatigue Syndrome (ME and CFS)

American Physical Therapy Association’s Combined Section’s Meeting, January 22, 2013:
Staci Stevens, Todd Davenport, Daniel Peterson and Ken Friedman comprised a panel that presented a 2 hour symposium on “Best Practices Update for Chronic Fatigue Syndrome/Myalgic Encephalomyelitis: The IACFS/ME Primer for Clinical Practitioners.”

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 Staci Stevens, Todd Davenport, Daniel Peterson and Ken Friedman

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